{"id":665,"date":"2024-04-20T13:22:10","date_gmt":"2024-04-20T13:22:10","guid":{"rendered":"http:\/\/localhost\/wordpress_sickle_cell\/?page_id=665"},"modified":"2025-04-24T13:59:06","modified_gmt":"2025-04-24T13:59:06","slug":"the-problem","status":"publish","type":"page","link":"https:\/\/duredemos.com\/sicklecell\/the-problem\/","title":{"rendered":"The problem"},"content":{"rendered":"<div class=\"brz-root__container brz-reset-all\">\n<section id=\"n_v6v33QU1lw\" class=\"brz-section brz-css-mgTVq\">\n<div class=\"brz-section__content brz-section--boxed brz-css-t8UXP brz-css-iSRpi\" data-brz-custom-id=\"a5dmtvcLY9gQ\">\n<div class=\"brz-container brz-css-dNNDs\">\n<div id class=\"brz-css-gVND9 brz-wrapper\">\n<div class=\"brz-embed-code brz-css-eHywJ\" data-brz-custom-id=\"vThn8covAj7w\">\n<div class=\"brz-embed-content\">\n<div>\n    .navbar {<br \/>\n      font-family: PT Sans;<br \/>\n      overflow: hidden;<br \/>\n      background-color: white;<br \/>\n    }<\/p>\n<p>    .navbar img {<br \/>\n      float: left;<br \/>\n      height: 80px;<br \/>\n      width: auto;<br \/>\n      padding: 5px 20px;<br \/>\n    }<\/p>\n<p>    .navbar a {<br \/>\n      font-family: PT Sans;<br \/>\n      font-size: 16px;<br \/>\n      font-weight: bold;<br \/>\n      float: left;<br \/>\n      display: block;<br \/>\n      color: black;<br \/>\n      text-align: center;<br \/>\n      padding: 27px 42px;<br \/>\n      text-decoration: none;<br \/>\n    }<\/p>\n<p>    .navbar a:hover {<br \/>\n      color: #a01c31;<br \/>\n      background-color: white;<br \/>\n      color: #a01c31;<br \/>\n    }<\/p>\n<p>    .dropdown {<br \/>\n      float: left;<br \/>\n      overflow: hidden;<br \/>\n    }<\/p>\n<p>    .dropdown .dropbtn {<br \/>\n      font-family: PT Sans;<br \/>\n      font-weight: bold;<br \/>\n      font-size: 16px;<br \/>\n      border: none;<br \/>\n      outline: none;<br \/>\n      color: black;<br \/>\n      padding: 25px 42px;<br \/>\n      background-color: inherit;<br \/>\n      font-family: inherit;<br \/>\n      margin: 0;<br \/>\n    }<\/p>\n<p>    .navbar a, .dropdown .dropbtn {<br \/>\n      display: inline-block;<br \/>\n    }<\/p>\n<p>    .dropdown-content {<br \/>\n      font-family: PT Sans;<br \/>\n      display: none;<br \/>\n      position: absolute;<br \/>\n      color: black;<br \/>\n      background-color: white;<br \/>\n      min-width: 160px;<br \/>\n      box-shadow: 0px 8px 16px 0px rgba(0,0,0,0.2);<br \/>\n      z-index: 1;<br \/>\n    }<\/p>\n<p>    .dropdown-content a {<br \/>\n      font-family: PT Sans;<br \/>\n      font-weight: inherit;<br \/>\n      float: none;<br \/>\n      color: black;<br \/>\n      padding: 12px 16px;<br \/>\n      text-decoration: none;<br \/>\n      display: block;<br \/>\n      text-align: left;<br \/>\n    }<\/p>\n<p>    .dropdown .dropbtn:hover {<br \/>\n      color: #a01c31;<br \/>\n    }<\/p>\n<p>    .dropdown-content a:hover {<br \/>\n      background-color: white;<br \/>\n      color: #a01c31;<br \/>\n    }<\/p>\n<p>    .dropdown:hover .dropdown-content {<br \/>\n      display: block;<br \/>\n    }<\/p>\n<p>    .donate {<br \/>\n      color: white!important;<br \/>\n      width: 180px;<br \/>\n        line-height: 0.1;<br \/>\n        letter-spacing: 0.5px;<br \/>\n        font-variation-settings: &#8220;wght&#8221; 400, &#8220;wdth&#8221; 100, &#8220;SOFT&#8221; 0;<br \/>\n        border: 0px solid rgba(255, 212, 9, 0);<br \/>\n        border-radius: 100px;<br \/>\n        background-color: rgba(160, 28, 49, 1);<br \/>\n        padding: 20px!important;<br \/>\n    }<\/p>\n<p>    .donate_div {<br \/>\n      padding-top: 16px!important;<br \/>\n    }<\/p>\n<p>    .donate:hover {<br \/>\n      background-color: #b71932!important;<br \/>\n    }<\/p>\n<p>    .dropdown-content .dropdown:hover .dropdown-content-inside {<br \/>\n      display: block;<br \/>\n      position: absolute;<br \/>\n      top: 0;<br \/>\n      left: 100%;<br \/>\n      min-width: 264px;<br \/>\n    }<\/p>\n<p>    .dropdown-content-inside {<br \/>\n      display:none;<br \/>\n      font-family: PT Sans;<br \/>\n      display: none;<br \/>\n      position: absolute;<br \/>\n      color: black;<br \/>\n      background-color: white;<br \/>\n      min-width: 160px;<br \/>\n      box-shadow: 0px 8px 16px 0px rgba(0,0,0,0.2);<br \/>\n      z-index: 1;<br \/>\n    }<\/p>\n<p>    \/* Media Query for 320px to 740px *\/<br \/>\n    @media screen and (min-width: 320px) and (max-width: 740px) {<br \/>\n      .navbar_desktop {<br \/>\n        display: none !important;<br \/>\n      }<br \/>\n      .navbar_mobile {<br \/>\n        display: block !important;<br \/>\n      }<br \/>\n      .dropBtn img{<br \/>\n        top: 5px;<br \/>\n        position: absolute;<br \/>\n        right: 20px;<br \/>\n        height: 65px !important;<br \/>\n      }<br \/>\n      .dropBtn {<br \/>\n        position: absolute;<br \/>\n        right: 0%;<br \/>\n      }<br \/>\n      .dropdown-content-mobile {<br \/>\n        display: none;<br \/>\n        min-width: 195px !important;<br \/>\n        position: absolute;<br \/>\n        top: 115%;<br \/>\n        right: 10%;<br \/>\n        transform: translateX(calc(100% &#8211; 240px)); \/* Move towards the left *\/<br \/>\n      }<br \/>\n      .dropdown-inner:hover .dp-content {<br \/>\n        display: block !important;<br \/>\n      }<br \/>\n      .dropdown-inner .dropbtn {<br \/>\n        font-family: PT Sans;<br \/>\n        font-weight: inherit;<br \/>\n        float: none;<br \/>\n        color: black;<br \/>\n        padding: 27px 10px; \/* Adjust padding to match other tabs *\/<br \/>\n        margin: 0 10px; \/* Add margin for spacing *\/<br \/>\n        text-decoration: none;<br \/>\n        display: inline-block; \/* Ensure inline-block display *\/<br \/>\n        text-align: center;<br \/>\n      }<br \/>\n      .donate {<br \/>\n        background-color: white;<br \/>\n        color: black !important;<br \/>\n      }<br \/>\n      .donate:hover {<br \/>\n        background-color: white !important;<br \/>\n        color: black !important;<br \/>\n      }<br \/>\n      .dp-content .dropdown:hover .dropdown-content-inside {<br \/>\n      display: block !important;<br \/>\n      min-width:135px;<br \/>\n      }<br \/>\n      .dp-content .dropdown-content-inside {<br \/>\n        left: 85% !important;<br \/>\n      }<br \/>\n    }<\/p>\n<p>    @media screen and (min-width: 740px) and (max-width: 1024px) {<br \/>\n       .navbar_desktop {<br \/>\n        display: none !important;<br \/>\n      }<br \/>\n      .navbar_mobile {<br \/>\n        display: block !important;<br \/>\n      }<br \/>\n      .dropBtn img {<br \/>\n        top: 5px;<br \/>\n        position: absolute;<br \/>\n        right: 20px;<br \/>\n        height: 65px !important;<br \/>\n      }<br \/>\n      .dropBtn {<br \/>\n        position: absolute;<br \/>\n        right: 0%;<br \/>\n      }<br \/>\n      .dropdown-content-mobile {<br \/>\n        display: none;<br \/>\n        min-width: 300px !important;<br \/>\n        position: absolute;<br \/>\n        top: 115%;<br \/>\n        right: 25%;<br \/>\n        transform: translateX(calc(100% &#8211; 240px)); \/* Move towards the left *\/<br \/>\n      }<br \/>\n      .dropdown-inner:hover .dp-content {<br \/>\n        display: block !important;<br \/>\n      }<br \/>\n      .dropdown-inner .dropbtn {<br \/>\n        font-family: PT Sans;<br \/>\n        font-weight: inherit;<br \/>\n        float: none;<br \/>\n        color: black;<br \/>\n        padding: 27px 10px; \/* Adjust padding to match other tabs *\/<br \/>\n        margin: 0 10px; \/* Add margin for spacing *\/<br \/>\n        text-decoration: none;<br \/>\n        display: inline-block; \/* Ensure inline-block display *\/<br \/>\n        text-align: center;<br \/>\n      }<br \/>\n      .donate {<br \/>\n        background-color: white;<br \/>\n        color: black !important;<br \/>\n      }<br \/>\n      .donate:hover {<br \/>\n        background-color: white !important;<br \/>\n        color: black !important;<br \/>\n      }<br \/>\n      .dp-content .dropdown:hover .dropdown-content-inside {<br \/>\n      display: block !important;<br \/>\n      min-width: 250px;<br \/>\n      }<br \/>\n      .dp-content .dropdown-content-inside {<br \/>\n        left: 90% !important;<br \/>\n      }<br \/>\n    }<\/p>\n<div class=\"navbar navbar_desktop\" id=\"myNavbar\">\n      <img decoding=\"async\" src=\"https:\/\/duredemos.com\/sicklecell\/wp-content\/uploads\/2024\/04\/asclogo.png\" alt=\"Logo\"><br \/>\n      <a href=\"https:\/\/duredemos.com\/sicklecell\/\">HOME<\/a><\/p>\n<div class=\"dropdown\">\n        <button class=\"dropbtn\">ABOUT US<br \/>\n        <\/button><\/p>\n<div class=\"dropdown-content\">\n          <a href=\"https:\/\/duredemos.com\/sicklecell\/the-problem\/\">THE PROBLEM<\/a><br \/>\n          <a href=\"https:\/\/duredemos.com\/sicklecell\/what-we-do\/\">WHAT WE DO<\/a><br \/>\n          <a href=\"https:\/\/duredemos.com\/sicklecell\/our-history\/\">OUR HISTORY<\/a><br \/>\n          <a href=\"https:\/\/duredemos.com\/sicklecell\/leadership\/\">LEADERSHIP<\/a><br \/>\n          <!-- Add more About Us related links here -->\n        <\/div>\n<\/p><\/div>\n<div class=\"dropdown\">\n        <button class=\"dropbtn\">PROGRAMS<br \/>\n        <\/button><\/p>\n<div class=\"dropdown-content\">\n          <a href=\"https:\/\/duredemos.com\/sicklecell\/health-system\/\">HEALTH SYSTEMS<\/a><br \/>\n          <a href=\"https:\/\/duredemos.com\/sicklecell\/health-financing\/\">HEALTH FINANCING<\/a><br \/>\n          <a href=\"https:\/\/duredemos.com\/sicklecell\/scd_livelihood\/\">SCD LIVELIHOODS <\/a><br \/>\n          <!-- Add more Programs related links here -->\n        <\/div>\n<\/p><\/div>\n<div class=\"dropdown\">\n        <button class=\"dropbtn\">RESOURCES<br \/>\n        <\/button><\/p>\n<div class=\"dropdown-content\">\n<div class=\"dropdown\" style=\"width: 100%\">\n                <button class=\"dropbtn\" style=\"font-family: PT Sans;font-weight: inherit;float: none;color: black;padding: 12px 16px;text-decoration: none;text-align: left\">COMMUNITY   &gt;<br \/>\n                  <i class=\"fa fa-caret-down\"><\/i><br \/>\n                <\/button><\/p>\n<div class=\"dropdown-content-inside\">\n                  <a href=\"https:\/\/duredemos.com\/sicklecell\/sickle-cell-virtual-peer-support\/\">Virtual Peer Support<\/a><br \/>\n                  <a href=\"https:\/\/duredemos.com\/sicklecell\/community\/\">Patients and Practitioners Community of Practise<\/a><br \/>\n                  <!-- Add more Resources related links here -->\n                <\/div>\n<\/p><\/div>\n<p>\n          <a href=\"\/sicklecell\/media-page\/\">MEDIA<\/a><br \/>\n          <a href=\"\/sicklecell\/content\/\">REPORTS<\/a><br \/>\n          <a href=\"\/sicklecell\/content\/\">BLOGS<\/a><br \/>\n          <!-- Add more Resources related links here -->\n        <\/div>\n<\/p><\/div>\n<div class=\"dropdown\">\n        <button class=\"dropbtn\">PARTNERS<br \/>\n        <\/button><\/p>\n<div class=\"dropdown-content\">\n          <a href=\"\/sicklecell\/become-partner\/\">BECOME A PARTNER<\/a><br \/>\n          <!-- Add more Programs related links here -->\n        <\/div>\n<\/p><\/div>\n<div class=\"donate_div\">\n      <a class=\"donate\" href=\"\/sicklecell\/donations\/\">Yes I want to help!<\/a><\/div>\n<\/p><\/div>\n<div class=\"navbar navbar_mobile\" id=\"myNavbar\">\n      <img decoding=\"async\" src=\"wp-content\/uploads\/2024\/04\/asclogo.png\" alt=\"Logo\"><\/p>\n<div class=\"dropdown menu-dropdown menu-dropdown-mobile\">\n        <button class=\"dropbtn dropBtn\"><br \/>\n          <img decoding=\"async\" src=\"https:\/\/duredemos.com\/sicklecell\/wp-content\/uploads\/2024\/05\/bars-solid.png\" alt=\"Logo\"><br \/>\n        <\/button><\/p>\n<div class=\"dropdown-content-mobile dropdown-content\">\n<div style=\"padding-left: 6px;padding-bottom: 3px\">\n          <a href=\"https:\/\/duredemos.com\/sicklecell\">HOME<\/a>\n            <\/div>\n<div class=\"container\">\n<div class=\"dropdown dropdown-inner\">\n            <button class=\"dropbtn\">ABOUT US<\/button><\/p>\n<div class=\"dropdown-content dp-content\">\n              <a href=\"https:\/\/duredemos.com\/sicklecell\/the-problem\/\">THE PROBLEM<\/a><br \/>\n              <a href=\"https:\/\/duredemos.com\/sicklecell\/what-we-do\/\">WHAT WE DO<\/a><br \/>\n              <a href=\"https:\/\/duredemos.com\/sicklecell\/leadership\/\">LEADERSHIP<\/a>\n            <\/div>\n<\/p><\/div>\n<\/p><\/div>\n<p><\/p>\n<div class=\"container\">\n<div class=\"dropdown dropdown-inner\">\n            <button class=\"dropbtn\">PROGRAMS<\/button><\/p>\n<div class=\"dropdown-content dp-content\">\n              <a href=\"https:\/\/duredemos.com\/sicklecell\/programs\/\">HEALTH SYSTEMS<\/a><br \/>\n              <a href=\"https:\/\/duredemos.com\/sicklecell\/health-financing\/\">HEALTH FINANCING<\/a><br \/>\n              <a href=\"https:\/\/duredemos.com\/sicklecell\/patient-empowerment\/\">PATIENT EMPOWERMENT <\/a>\n            <\/div>\n<\/p><\/div>\n<\/p><\/div>\n<p><\/p>\n<div class=\"container\">\n<div class=\"dropdown dropdown-inner\" style=\"padding-bottom: 10px\">\n            <button class=\"dropbtn\">RESOURCES<\/button><\/p>\n<div class=\"dropdown-content dp-content\">\n<div class=\"dropdown\">\n                <button class=\"dropbtn\">COMMUNITY   &gt;<\/button><\/p>\n<div class=\"dropdown-content-inside\">\n                  <a href=\"https:\/\/duredemos.com\/sicklecell\/sickle-cell-virtual-peer-support\/\">Virtual Peer Support<\/a><br \/>\n                  <a href=\"https:\/\/duredemos.com\/sicklecell\/community\/\">Patients and Practitioners Community of Practice<\/a>\n                <\/div>\n<\/p><\/div>\n<p>              <a href=\"https:\/\/duredemos.com\/sicklecell\/media-2\/\">MEDIA<\/a><br \/>\n              <a href=\"resources-page-url\">ARTICLES<\/a>\n            <\/div>\n<\/p><\/div>\n<\/p><\/div>\n<p><\/p>\n<div style=\"padding-left: 4px;padding-bottom: 5px\">\n          <a href=\"https:\/\/duredemos.com\/sicklecell\/partners\/\">PARTNERS<\/a>\n           <\/div>\n<div class=\"donate_div\">\n            <a class=\"donate\" href=\"\/sicklecell\/donations\/\">Yes I want to help!<\/a>\n          <\/div>\n<\/p><\/div>\n<\/p><\/div>\n<\/p><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n<section id=\"rQqyBt4I7VHe\" class=\"brz-section brz-css-mgTVq\">\n<div class=\"brz-section__content brz-section--boxed brz-css-t8UXP brz-css-nvw2b\" data-brz-custom-id=\"qxCLBYBcTF6a\">\n<div class=\"brz-container brz-css-dNNDs\">\n<div id class=\"brz-css-gVND9 brz-wrapper\">\n<div class=\"brz-rich-text brz-rich-text__custom brz-css-krahg\" data-brz-custom-id=\"gfwMU3TuvLPz\">\n<div data-brz-translate-text=\"1\">\n<h3 class=\"brz-text-lg-center brz-ls-lg-0_2 brz-lh-lg-1_4 brz-vfw-lg-400 brz-fwdth-lg-100 brz-fsft-lg-0 brz-tp-lg-empty brz-ff-domine brz-ft-google brz-fs-lg-40 brz-fss-lg-px brz-fw-lg-700 brz-css-m7jpM\" data-generated-css=\"brz-css-pvrIc\" data-uniq-id=\"h0hmn\">The Problem<\/h3>\n<\/div>\n<\/div>\n<\/div>\n<div id class=\"brz-css-gVND9 brz-css-hFX4L brz-wrapper\">\n<div class=\"brz-line brz-line-default brz-css-b7Spt brz-css-cYBgW\" data-brz-custom-id=\"haMYUGgfVL8A\">\n<hr class=\"brz-hr\"><\/div>\n<\/div>\n<div id class=\"brz-css-gVND9 brz-wrapper\">\n<div class=\"brz-rich-text brz-rich-text__custom brz-css-krahg\" data-brz-custom-id=\"mP6RwD3VPy1P\">\n<div data-brz-translate-text=\"1\">\n<p class=\"brz-ff-domine brz-tp-lg-empty brz-fs-lg-19 brz-ft-google brz-fsft-lg-0 brz-fwdth-lg-100 brz-vfw-lg-400 brz-lh-lg-1_9 brz-ls-lg-0_2 brz-fw-lg-400 brz-fss-lg-px brz-text-lg-center brz-css-e7pLK\" data-generated-css=\"brz-css-pgQCa\" data-uniq-id=\"dgtgB\"><span class=\"brz-cp-color2\">The overwhelming majority of People Living with Sickle Cell Disease in sub-Saharan Africa do not have access to comprehensive, timely, quality and affordable diagnosis, clinical management and patient care.&nbsp;&nbsp;<\/span><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n<section id=\"sifxtYFAj_NN\" class=\"brz-section brz-css-mgTVq\">\n<div class=\"brz-section__content brz-section--boxed brz-css-t8UXP brz-css-juhXJ\" data-brz-custom-id=\"w2fwieot5UA1\">\n<div class=\"brz-bg\">\n<div class=\"brz-bg-color\"><\/div>\n<\/div>\n<div class=\"brz-container brz-css-dNNDs\">\n<div class=\"brz-row__container brz-css-ieBlF\" data-brz-custom-id=\"cQhQQisDG9Px\">\n<div class=\"brz-bg\"><\/div>\n<div class=\"brz-row brz-css-kJIJq brz-css-bgZaX\">\n<div class=\"brz-columns brz-css-rs2TB brz-css-ejsPu\" data-brz-custom-id=\"iD6iEQoM9tdr\">\n<div class=\"brz-bg\">\n<div class=\"brz-bg-color\"><\/div>\n<\/div>\n<div class=\"brz-column__items brz-css-b8mLu brz-css-gQjfe\">\n<div id class=\"brz-css-gVND9 brz-wrapper\">\n<div class=\"brz-image brz-css-pfbkJ\" data-brz-custom-id=\"iEUcKa1v4gya\"><img decoding=\"async\" class=\"brz-img\" src=\"https:\/\/duredemos.com\/sicklecell\/wp-content\/uploads\/2024\/04\/asclogo-2.png\" alt=\"\" loading=\"lazy\"><\/div>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"brz-columns brz-css-rs2TB brz-css-tDsbz\" data-brz-custom-id=\"wRTEDV_QkmkB\">\n<div class=\"brz-bg\"><\/div>\n<div class=\"brz-column__items brz-css-b8mLu\">\n<div id class=\"brz-css-gVND9 brz-css-doDSd brz-wrapper\">\n<div class=\"brz-rich-text brz-rich-text__custom brz-css-krahg\" data-brz-custom-id=\"uGFsKyIBWpih\">\n<div data-brz-translate-text=\"1\">\n<p class=\"brz-text-lg-center brz-mb-lg-15 brz-tp-lg-empty brz-ff-domine brz-ft-google brz-fs-lg-22 brz-fss-lg-px brz-fw-lg-700 brz-ls-lg-0_2 brz-lh-lg-1_9 brz-vfw-lg-400 brz-fwdth-lg-100 brz-fsft-lg-0 brz-css-k_6km\" data-generated-css=\"brz-css-hnugD\" data-uniq-id=\"ocNHD\"><span class=\"brz-cp-color8\">Globally, each year over 515,000 children are born with SCD and over 70% of these births occur in sub-Saharan Africa (SSA). Here the under-five childhood mortality is highest up to 90% and patients lose up to 50 years of healthy life.&nbsp;<\/span><\/p>\n<p class=\"brz-text-lg-center brz-fss-lg-px brz-fw-lg-700 brz-ls-lg-0_2 brz-lh-lg-1_9 brz-vfw-lg-400 brz-fwdth-lg-100 brz-fsft-lg-0 brz-tp-lg-empty brz-ff-pt_sans brz-ft-google brz-fs-lg-24 brz-css-swz39\" data-generated-css=\"brz-css-vuhDn\" data-uniq-id=\"l0lom\"><span class=\"brz-cp-color8\">In Kenya, 14,000 children are born with SCD annually.&nbsp;<\/span><\/p>\n<p class=\"brz-tp-lg-paragraph brz-css-c5Hb3\" data-generated-css=\"brz-css-e0FQZ\" data-uniq-id=\"f5d4M\"><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n<section id=\"ntLgqQGvVj8U\" class=\"brz-section brz-css-mgTVq\">\n<div class=\"brz-section__content brz-section--boxed brz-css-t8UXP brz-css-vGiBp\" data-brz-custom-id=\"fgvE21WZWeOw\">\n<div class=\"brz-bg\"><\/div>\n<div class=\"brz-container brz-css-dNNDs brz-css-qul3f\">\n<div class=\"brz-row__container brz-css-ieBlF\" data-brz-custom-id=\"pRBArlzTIL52\">\n<div class=\"brz-bg\"><\/div>\n<div class=\"brz-row brz-css-kJIJq brz-css-bgZaX\">\n<div class=\"brz-columns brz-css-rs2TB\" data-brz-custom-id=\"dm7G7EABraSz\">\n<div class=\"brz-bg\"><\/div>\n<div class=\"brz-column__items brz-css-b8mLu\">\n<div id class=\"brz-css-gVND9 brz-css-gsMXz brz-wrapper\">\n<div class=\"brz-image brz-css-bchiF\" data-brz-custom-id=\"bCULM714TKB1\"><img decoding=\"async\" class=\"brz-img\" src=\"https:\/\/duredemos.com\/sicklecell\/wp-content\/uploads\/brizy\/imgs\/IMG_3111-501x334x29x0x444x334x1714640464.jpg\" alt=\"\" loading=\"lazy\"><\/div>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"brz-columns brz-css-rs2TB\" data-brz-custom-id=\"m8KmLkyChRVG\">\n<div class=\"brz-bg\"><\/div>\n<div class=\"brz-column__items brz-css-b8mLu brz-css-yN3ZX\">\n<div id class=\"brz-css-gVND9 brz-css-hT4_7 brz-wrapper\">\n<div class=\"brz-rich-text brz-rich-text__custom brz-css-krahg\" data-brz-custom-id=\"uidcwtM1lBej\">\n<div data-brz-translate-text=\"1\">\n<p class=\"brz-mt-lg-10 brz-fsft-lg-0 brz-fwdth-lg-100 brz-vfw-lg-400 brz-lh-lg-1_6 brz-ls-lg-0 brz-fw-lg-400 brz-fss-lg-px brz-fs-lg-17 brz-ft-google brz-ff-domine brz-tp-lg-empty brz-mb-xs-22 brz-mt-xs-22 brz-tp-xs-subtitle brz-mb-lg-20 brz-mb-sm-30 brz-mt-sm-30 brz-css-pCaPg\" data-generated-css=\"brz-css-fAhbp\" data-uniq-id=\"eU5vb\"><span class=\"brz-cp-color2\">Most countries lack the resources to prioritise comprehensive sickle cell care despite availability of proven interventions. The lack of data on disease burden, fragmented early diagnosis and linkage to care, varied access to affordable essential medicines, lack of comprehensive clinical services, limited availability to SCD therapies, poor healthcare provider capacity are some of the challenges in the SCD response in SSA.<\/span><\/p>\n<p class=\"brz-fsft-lg-0 brz-fwdth-lg-100 brz-vfw-lg-400 brz-lh-lg-1_6 brz-ls-lg-0 brz-fw-lg-400 brz-fss-lg-px brz-fs-lg-17 brz-ft-google brz-ff-domine brz-tp-lg-empty brz-mb-xs-22 brz-mt-xs-22 brz-tp-xs-subtitle brz-mb-lg-20 brz-mt-lg-20 brz-mb-sm-30 brz-mt-sm-30 brz-css-au_h8\" data-generated-css=\"brz-css-mL09d\" data-uniq-id=\"gwx_n\"><span class=\"brz-cp-color2\">In addition to preventable lifelong complications and disability, people living with sickle cell experience stigma, disrupted education and employment and catastrophic out-of-pocket expenditure to access care.&nbsp;This contributes to poverty, negative mental health and reduced opportunities to thrive for People Living with SCD (PLSCD).&nbsp;&nbsp;<\/span><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n<section id=\"sG2Ygpl7lA5Q\" class=\"brz-section brz-css-mgTVq\">\n<div class=\"brz-section__content brz-section--boxed brz-css-t8UXP brz-css-wOfOK\" data-brz-custom-id=\"ydKbJjdqFhdb\">\n<div class=\"brz-container brz-css-dNNDs\">\n<div class=\"brz-row__container brz-css-ieBlF\" data-brz-custom-id=\"nTQS2wcZfll4\">\n<div class=\"brz-bg\"><\/div>\n<div class=\"brz-row brz-css-kJIJq brz-css-bgZaX\">\n<div class=\"brz-columns brz-css-rs2TB brz-css-dAtZ3\" data-brz-custom-id=\"jzAhWdzhgy5O\">\n<div class=\"brz-bg\"><\/div>\n<div class=\"brz-column__items brz-css-b8mLu\">\n<div id class=\"brz-css-gVND9 brz-css-aiF3M brz-wrapper\">\n<div class=\"brz-embed-code brz-css-eHywJ\" data-brz-custom-id=\"oF0okPhMEr3f\">\n<div class=\"brz-embed-content\">\n<div>\n  body, html {<br \/>\n    margin: 0;<br \/>\n    padding: 0;<br \/>\n    font-family: PT Sans;<br \/>\n}<\/p>\n<p>.container {<br \/>\n    display: flex;<br \/>\n}<\/p>\n<p>header {<br \/>\n    color: #fff;<br \/>\n    padding-top: 8px;<br \/>\n    width: 100%;<br \/>\n}<\/p>\n<p>#menu-toggle {<br \/>\n    background: none;<br \/>\n    border: none;<br \/>\n    color: #514d4c;<br \/>\n    font-size: 15px;<br \/>\n    cursor: pointer;<br \/>\n    outline: none !important;<br \/>\n}<\/p>\n<p>nav {<br \/>\n    font-family: PT Sans;<br \/>\n    background-color: black;<br \/>\n    color: #fff;<br \/>\n    position: fixed;<br \/>\n      top: 0;<br \/>\n    right: -375px; \/* Changed to right side *\/<br \/>\n    width: 375px;<br \/>\n    height: 100%;<br \/>\n    overflow-y: auto; \/* Added overflow property for vertical scrolling *\/<br \/>\n    transition: right 0.3s ease; \/* Changed from left to right *\/<br \/>\n    padding: 30px;<br \/>\n    z-index: 99;<br \/>\n}<\/p>\n<p>main {<br \/>\n    flex-grow: 1;<br \/>\n    padding: 20px;<br \/>\n}<\/p>\n<p>\/* Add this CSS for exit button *\/<br \/>\n#exit-button {<br \/>\n    position: absolute;<br \/>\n    top: 10px;<br \/>\n    right: 10px;<br \/>\n    background: none;<br \/>\n    border: none;<br \/>\n    color: #fff;<br \/>\n    font-size: 20px;<br \/>\n    cursor: pointer;<br \/>\n}<\/p>\n<p>.line {<br \/>\n    border: none;<br \/>\n    height: 2px;<br \/>\n    background-color: #a01c31;<br \/>\n    width: 60px;<br \/>\n}<\/p>\n<div class=\"container\">\n<header>\n            <button class=\"menu-toggle\" id=\"menu-toggle\">PRIVACY POLICY<\/button><br \/>\n        <\/header>\n<nav id=\"menu\">\n<h4> TERMS OF USE <\/h4>\n<div class=\"line\"><\/div>\n<h6>Africa Sickle Cell Organization (\u201cwe\u201d, \u201cus\u201d) owns and operates www.africasicklecell.org (\u201cthe\/our website\u201d). Any person accessing and\/or using the website (\u201cthe visitor\/user\u201d) agrees to the \u201cTerms of Use\u201d, containing the conditions, rules and other provisions with respect to the access and\/or use of our website. If you have questions about the \u201cTerms of Use\u201d, please feel free to contact us at africasicklecellorg@gmail.com<\/h6>\n<p><\/p>\n<h4>CONTENT<\/h4>\n<h5>GENERAL USE<\/h5>\n<div class=\"line\"><\/div>\n<h6>The material contained on this website is for information only. The website is entitled to be served as an information resource for the internal and external stakeholders of Africa Sickle Cell Organization, including the general public. Third-Party Websites Links to other websites are provided solely as a convenience and therefore imply neither Africa Sickle Cell Organization\u2019s responsibility for, nor its approval of the information contained in these websites. Intellectual Property Any use of information from the website should have an acknowledgement of Africa Sickle Cell Organization\/Third-Party as a source respectively, citing the corresponding uniform resource locator (URL).<\/h6>\n<h6>Logo and Name The use of Africa Sickle Cell Organization\u2019s name and\/or logo is prohibited without prior express authorization from Africa Sickle Cell Organization. The access and\/or use of the website does not permit to copy, reproduce, modify, distribute or elsehow exploit Africa Sickle Cell Organization\u2019s name and\/or logo except with the prior explicit permission. Abuse and Violation Any abuse or violations of the Terms of Use and\/or Privacy Policy should be reported to africasicklecellorg@gmail.com.<\/h6>\n<p><\/p>\n<h4>DISCLAIMER<\/h4>\n<div class=\"line\"><\/div>\n<h6>Africa Sickle Cell Organization renounces any liability or responsibility for any damages of any nature whatsoever resulting from the use of, inability to use, and\/or reliance on the material and information contained on our website. Africa Sickle Cell Organization makes no representations or warranties as to the completeness or accuracy of any of the information available on the website as well as does not provide any warranties regarding the security of the content of our website or any linked websites.<\/h6>\n<h6>Africa Sickle Cell Organization endeavours to make its best effort to keep the information accurate and updated on a regular basis, however this is not claimed to be exhaustive. Africa Sickle Cell Organization does not guarantee that the website is continuously available and error-free at all times.<\/h6>\n<p><\/p>\n<h4>PRIVACY POLICY<\/h4>\n<div class=\"line\"><\/div>\n<h6>Africa Sickle Cell Organization is committed to protecting the privacy and security of visitors to our website. Outlined below is our online privacy policy for information collected through our website. If you have questions about these policies, please feel free to contact us at africasicklecellorg@gmail.com.<\/h6>\n<p><\/p>\n<h4>PERSONAL INFORMATION<\/h4>\n<div class=\"line\"><\/div>\n<h6>We constantly analyse our website logs to improve the value of our website. We do not use this analysis to record or track any personally identifiable information of our visitors. If you are asked to provide personal information such as your name, e-mail or\/and postal address when requesting information, providing feedback, registering to a newsletter, or using any other functions of the website, be assured that all such information is considered by Africa Sickle Cell Organization both private and secure.<\/h6>\n<h6>Africa Sickle Cell Organization does not share or sell your personal information to third parties. Under no circumstance will details be disclosed publicly, except in order to comply with any legal obligation. This policy reiterates that Africa Sickle Cell Organization fully appreciates the importance of online privacy and is committed to protecting your personal information.<\/h6>\n<h6>Our website is enhanced by cookie files to personalize and customize the experience of our visitors and to support some necessary functions. Africa Sickle Cell Organization collects broad usage statistics using Google Analytics, to better understand how our visitors use our website, and to help us improve visitors\u2019 experience. Such information includes the IP address (where available), browser type, and any additional information provided by a browser during the use of our website.<\/h6>\n<h6>The statistical data about our users\u2019 browsing actions and patterns does not identify any individual. You may choose to accept or refuse cookies by modifying your browser preferences. If you wish to get notified when a cookies are set, this option should also be available in your browser settings. Please note that if you reject some or all cookies, your experience at this and other websites throughout the Internet may not be complete.<\/h6>\n<p><\/p>\n<h4>PAYMENT TRANSACTIONS<\/h4>\n<div class=\"line\"><\/div>\n<h6>To enable Africa Sickle Cell Organization to process any order or registration to an event, a secure online payment system may be used to process payments using credit card details. Africa Sickle Cell Organization will not be collecting or storing credit card details in our system.<\/h6>\n<p><\/p>\n<h4>THIRD-PARTY WEBSITES<\/h4>\n<div class=\"line\"><\/div>\n<h6>Please be aware that other websites to which links may be provided, including social media, may collect visitor\u2019s personally identifiable information when accessed. The information collection practices of other websites linked to Africa Sickle Cell Organization\u2019s website are not covered by this Privacy Policy.<\/h6>\n<p><\/p>\n<h4>COOKIE POLICY<\/h4>\n<div class=\"line\"><\/div>\n<h6>Some of our web pages utilise \u201ccookies\u201d. A \u201ccookie\u201d is a small text file that may be used, for example, to collect information about web site activity. Some cookies and other technologies may serve to recall Personal Information previously indicated by a web user. Most browsers allow you to control cookies, including whether or not to accept them and how to remove them.<\/h6>\n<h6>Some cookies are necessary for the operation of our website, if you choose to block them some aspects of the site may not work for you. Non necessary cookies are only set when you have given your explicit consent to their use. Such cookies included those set by our statistics package Google Analytics.<\/h6>\n<h6>We are committed to privacy and support current industry initiatives to preserve individual privacy rights on the Internet. Protecting your privacy on-line is an evolving area and this website will constantly evolve to meet these demands.<\/h6>\n<\/p>\n<p>          <button id=\"exit-button\">&times;<\/button><br \/>\n        <\/nav>\n<\/p><\/div>\n<p>      const menuToggle = document.getElementById(&#8216;menu-toggle&#8217;);<br \/>\nconst menu = document.getElementById(&#8216;menu&#8217;);<\/p>\n<p>let isMenuOpen = false; \/\/ Variable to keep track of menu state<\/p>\n<p>menuToggle.addEventListener(&#8216;click&#8217;, () =&gt; {<br \/>\n    if (!isMenuOpen) { \/\/ If menu is closed<br \/>\n        menu.style.right = &#8216;0&#8217;; \/\/ Open the menu from the right<br \/>\n        isMenuOpen = true; \/\/ Update menu state to open<br \/>\n    } else { \/\/ If menu is open<br \/>\n        menu.style.right = &#8216;-375px&#8217;; \/\/ Close the menu to the right<br \/>\n        isMenuOpen = false; \/\/ Update menu state to closed<br \/>\n    }<br \/>\n});<\/p>\n<p>  const exitButton = document.getElementById(&#8216;exit-button&#8217;);<\/p>\n<p>exitButton.addEventListener(&#8216;click&#8217;, () =&gt; {<br \/>\n    menu.style.right = &#8216;-375px&#8217;; \/\/ Close the menu to the right<br \/>\n    isMenuOpen = false; \/\/ Update menu state to closed<br \/>\n});<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"brz-columns brz-css-rs2TB brz-css-lnRoJ\" data-brz-custom-id=\"my6wr85kc2gC\">\n<div class=\"brz-bg\"><\/div>\n<div class=\"brz-column__items brz-css-b8mLu\">\n<div id class=\"brz-css-gVND9 brz-wrapper\">\n<div class=\"brz-rich-text brz-rich-text__custom brz-css-krahg\" data-brz-custom-id=\"t1VgkqM5AS04\">\n<div data-brz-translate-text=\"1\">\n<p class=\"brz-text-lg-justify brz-tp-lg-empty brz-ff-pt_sans brz-ft-google brz-fs-lg-15 brz-fss-lg-px brz-fw-lg-400 brz-ls-lg-0 brz-lh-lg-1_9 brz-vfw-lg-400 brz-fwdth-lg-100 brz-fsft-lg-0 brz-mt-lg-4 brz-mt-xs-4 brz-mt-sm-4 brz-css-wRwk9\" data-uniq-id=\"i0PL7\" data-generated-css=\"brz-css-zYFQR\"><a class=\"link--page\" href=\"\" data-brz-link-type=\"page\">CONTACT US<\/a><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"brz-columns brz-css-rs2TB brz-css-cJJ9H\" data-brz-custom-id=\"iQHgM_NYnZSc\">\n<div class=\"brz-bg\"><\/div>\n<div class=\"brz-column__items brz-css-b8mLu\">\n<div class=\"brz-wrapper-clone brz-css-b_i41\">\n<div class=\"brz-d-xs-flex brz-flex-xs-wrap brz-css-yCmOn brz-css-jWndE\" data-brz-custom-id>\n<div class=\"brz-wrapper-clone__item\" id=\"rfQ0dU7NBEOQ\">\n<div class=\"brz-icon__container\" data-brz-custom-id=\"rfQ0dU7NBEOQ\"><span class=\"brz-icon brz-span brz-css-fcMWa brz-css-vRQkm\"><!--! Font Awesome Free 6.4.2 by @fontawesome - https:\/\/fontawesome.com License - https:\/\/fontawesome.com\/license\/free (Icons: CC BY 4.0, Fonts: SIL OFL 1.1, Code: MIT License) Copyright 2023 Fonticons, Inc.--><\/span><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"brz-columns brz-css-rs2TB brz-css-yD6Bl\" data-brz-custom-id=\"xurH3GF_5Huq\">\n<div class=\"brz-bg\"><\/div>\n<div class=\"brz-column__items brz-css-b8mLu\">\n<div class=\"brz-wrapper-clone brz-css-b_i41\">\n<div class=\"brz-d-xs-flex brz-flex-xs-wrap brz-css-yCmOn brz-css-mXc75\" data-brz-custom-id>\n<div class=\"brz-wrapper-clone__item\" id=\"szh8PXjBL09e\">\n<div class=\"brz-icon__container\" data-brz-custom-id=\"szh8PXjBL09e\"><span class=\"brz-icon brz-span brz-css-fcMWa brz-css-kOADt\"><\/span><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n<\/div>\n<p>    <!-- version:1745503146 --><\/p>\n","protected":false},"excerpt":{"rendered":"<p>.navbar { font-family: PT Sans; overflow: hidden; background-color: white; } .navbar img { float: left; height: 80px; width: auto; padding: 5px 20px; } .navbar a { font-family: PT Sans; font-size: 16px; font-weight: bold; float: left; display: block; color: black; text-align: center; padding: 27px 42px; text-decoration: none; } .navbar a:hover { color: #a01c31; background-color: white; color: [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"brizy-blank-template.php","meta":{"footnotes":""},"class_list":["post-665","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/duredemos.com\/sicklecell\/wp-json\/wp\/v2\/pages\/665","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/duredemos.com\/sicklecell\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/duredemos.com\/sicklecell\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/duredemos.com\/sicklecell\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/duredemos.com\/sicklecell\/wp-json\/wp\/v2\/comments?post=665"}],"version-history":[{"count":30,"href":"https:\/\/duredemos.com\/sicklecell\/wp-json\/wp\/v2\/pages\/665\/revisions"}],"predecessor-version":[{"id":5659,"href":"https:\/\/duredemos.com\/sicklecell\/wp-json\/wp\/v2\/pages\/665\/revisions\/5659"}],"wp:attachment":[{"href":"https:\/\/duredemos.com\/sicklecell\/wp-json\/wp\/v2\/media?parent=665"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}