Saving sickle cell lives in rural Africa

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WHAT WE DO

Saving Sickle Cell Lives in Rural Africa 

We improve the survival, health and well-being of sickle cell patients and their households through access to comprehensive, high quality, timely and affordable care where they live. 

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SICKLE CELL

WHAT IS SICKLE CELL

Sickle Cell Anemia is one of a group of genetic disorders known as Sickle Cell Disease (SCD). It causes the deformation of round normal red blood cells to sickle-shaped red blood cells.

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HOW WE WORK?

We partner with high sickle cell burden counties in Kenya to establish county (sub-national) sickle cell programs to make early and continuous sickle cell inpatient and outpatient care available at public hospitals. We provide health insurance coverage for patients to afford this care. And address the social issues facing patients that limit their healthy lives. We advocate to county governments to prioritize sickle cell in policy and budgets for sustained healthcare delivery and access in high sickle cell burden counties in Kenya.

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PROGRAMS

health sys

Health systems 

To enhance resilience of primary and tertiary level facilities to provide SCD care

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health-finance

Health Financing 

To provide health coverage to vulnerable SCD patients and households in rural high burden communities

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SCD Livelihoods

To build patient capability to thrive with Sickle Cell

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OUR IMPACT

150

Patients Covered

2000

SCD Patients Accessing Care 

4

SCD Clinics 

Ruth

CAREGIVER AND CHW

My 7year old daughter has sickle cell and it’s been a very bumpy ride as a mother. I have experienced a lot so far. Now, she has the best medicine. She has not had severe crisis since 2021 February. I’m so happy she’s better because when she’s doing well so am I. Thanks for the support I get from my fellow parents and the support of ASCO for paying for our NHIF that enabled me to us daily treatment for my daughter.

Nobert Khamadi

MEMBER OF COUNTY ASSEMBLY TAITA-TAVETA COUNTY

Early detection is a challenge because there is still a lack of awareness about SCD. In Taita-Taveta county we leaders are yet to sufficiently prioritize sickle cell. To ensure prioritization we need data to allow us to allocate proper funding to this issue. And devolve health services further down to community and primary health units to ensure accessibility of health services. This is what ASCO is working towards.

Mabele

Person living with Sickle Cell

Thank you for your hospitality and education you instilled in me. Before I used to get sick and was hospitalized every week. Now I know how to manage sickle cell with food, hydration. You have provided NHIF which allows me to access medicines. You provide us with transport and food for our clinic day meetings. And helped create income generating activities that gets us money to sustain us.

Dr Felix Kimotho

MEDICAL SUPERINTENDENT ACTOR

Through ASCOs advocacy efforts the county government department of health services has made available sickle cell essential medicines in its tertiary level hospitals. We have capacity built healthcare workers to manage and provide acute care for sickle cell complications. We still need more resource and financial investment to strengthen systems and have sustained advocacy for sickle cell.

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