MEDIA

Think Global health

Kenya's Greatest Sickle Cell Disease Advocate

Lea Kilenga Masamo is destigmatizing a rare genetic condition to improve care for forgotten patients

The Guardian

Silence, stigma and unaffordable drugs: the Kenyan woman finding sickle cell solutions

BBC

Kenya sickle cell: Fighting to dispel the myths around the disease

Sickle cell disease affects more people in countries in Africa than anywhere else in the world. BBC Africa Eye joined...

BBC

Health check

Sickle cell disease: Fighting for the future

IHP :

Lea Kilenga Masamo is a patient advocate with 9 years professional experience in patient centered global health advocacy with a focus on Sickle Cell and NCDs in LMICs...

SICKLE CELL: THE ENEMY WITHIN - BBC AFRICA EYE DOCUMENTARY

The Rising cases of Non-Communicable Diseases in Kenya A case of Taita Taveta County

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CONTENT

GENERAL USE

The material contained on this website is for information only. The website is entitled to be served as an information resource for the internal and external stakeholders of Africa Sickle Cell Organization, including the general public. Third-Party Websites Links to other websites are provided solely as a convenience and therefore imply neither Africa Sickle Cell Organization’s responsibility for, nor its approval of the information contained in these websites. Intellectual Property Any use of information from the website should have an acknowledgement of Africa Sickle Cell Organization/Third-Party as a source respectively, citing the corresponding uniform resource locator (URL).

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PRIVACY POLICY

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PERSONAL INFORMATION

We constantly analyse our website logs to improve the value of our website. We do not use this analysis to record or track any personally identifiable information of our visitors. If you are asked to provide personal information such as your name, e-mail or/and postal address when requesting information, providing feedback, registering to a newsletter, or using any other functions of the website, be assured that all such information is considered by Africa Sickle Cell Organization both private and secure.

Africa Sickle Cell Organization does not share or sell your personal information to third parties. Under no circumstance will details be disclosed publicly, except in order to comply with any legal obligation. This policy reiterates that Africa Sickle Cell Organization fully appreciates the importance of online privacy and is committed to protecting your personal information.

Our website is enhanced by cookie files to personalize and customize the experience of our visitors and to support some necessary functions. Africa Sickle Cell Organization collects broad usage statistics using Google Analytics, to better understand how our visitors use our website, and to help us improve visitors’ experience. Such information includes the IP address (where available), browser type, and any additional information provided by a browser during the use of our website.

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THIRD-PARTY WEBSITES

Please be aware that other websites to which links may be provided, including social media, may collect visitor’s personally identifiable information when accessed. The information collection practices of other websites linked to Africa Sickle Cell Organization’s website are not covered by this Privacy Policy.

COOKIE POLICY

Some of our web pages utilise “cookies”. A “cookie” is a small text file that may be used, for example, to collect information about web site activity. Some cookies and other technologies may serve to recall Personal Information previously indicated by a web user. Most browsers allow you to control cookies, including whether or not to accept them and how to remove them.

Some cookies are necessary for the operation of our website, if you choose to block them some aspects of the site may not work for you. Non necessary cookies are only set when you have given your explicit consent to their use. Such cookies included those set by our statistics package Google Analytics.

We are committed to privacy and support current industry initiatives to preserve individual privacy rights on the Internet. Protecting your privacy on-line is an evolving area and this website will constantly evolve to meet these demands.